About Genomic Data Infrastructure Ireland
Genomic Data Infrastructure (GDI) Ireland is the Irish arm of the European
GDI project which aims to create federated genetic data infrastructures across Europe to allow for safe and secure sharing of genomic data.
Click here to learn about key terms related to genetics and genomics.
A
federated genetic data infrastructure will allow countries taking part in the project to collaboratively share data while storing the data in their own country. This
ensures data privacy and protection. Access to analyse the data will only be granted to individuals after a review process.
Ireland has committed to the
onboarding stage of the overall European GDI project, which means that over the next 4 years we will develop a
proof-of-concept infrastructure that will be tested using artificial genetic data first. This is to ensure that the infrastructure works correctly and is safe and secure.
This work follows the
Beyond 1 Million Genomes
(B1MG) project and is part of the implementation of the
1+Million
Genomes (1+MG) initiative, which Ireland officially joined in 2022.
This will be achieved by addressing 6 main activities:
- 1: Collaborate with expert stakeholders in Ireland including the Dept. of Health, HSE, healthcare professionals, researchers, patients and the public.
- 2: Create a long-term sustainaility plan for the infrastructure.
- 3: Develop a proof-of-concept genetic data infrastructure.
- 4: Ensure that any data that enters the infrastructure is stored safely and securely in line with national and European standards.
- 5: Work with patients, the public, researchers and healthcare professionals to design a public Irish genome sequencing project.
- 6: Create and share training materials for users of the infrastructure.